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Data and Samples available

The Autism Consortium is committed to sharing our extensive collection of data and samples for research on autism spectrum disorders.  De-identified data on family structure, age, sex, clinical status, and diagnosis ("clinical data"), RNA, DNA and cell line cultures ("biomaterials"), and data derived from extensive phenotyping assessments including ADI, ADOS, IQ measures and others (“phenotyping data"), are available for distribution to qualified PIs and faculty studying autism spectrum disorders.  See the access policy. 

We have data from over 525 families that generously gave their time and effort to participate in this important collection.  There are over 1800 DNA samples and over 1850 cell lines available.  Information on the phenotyping data is below.

  • Autism Broader Phenotype

     

    Instrument

    Count

    BPASS - Prelim. 343
    Broader Autism Phenotype Questionnaire (BAPQ) - Prelim.  361
    Repetitive Behavior Scale-Revised (RBS-R)  561
    Social Responsiveness Scale-Adult (SRS-Adult)  648
    Social Responsiveness Scale-Parent (SRS-Parent)  632
    Social Responsiveness Scale-Preschool (SRS-Preschool) 48

     

  • Autism Diagnostic Measures

     

    Instrument

    count

    Autism Diagnostic Interview-Revised (ADI-R)  582
    Autism Diagnostic Observation Schedule - Module 1 (ADOS-Module 1) 146
    Autism Diagnostic Observation Schedule - Module 2 (ADOS-Module 2) 137
    Autism Diagnostic Observation Schedule - Module 3 (ADOS-Module 3) 257
    Autism Diagnostic Observation Schedule - Module 4 (ADOS-Module 4) 19

     

  • Cognitive Measures

     

    Instrument

    count

    Differential Ability Scales II - Early Years (DASII-EY) - Prelim. 147
    Differential Ability Scales II - School Age (DASII-SA) - Prelim. 48
    Leiter International Performance Scale-Revised (Leiter-R) 5
    Mullen Scale of Early Learning (MSEL)  135
    Wechsler Abbreviated Scale of Intelligence (WASI)  561
    Wechsler Intelligence Scale for Children-Fourth Edition (WISC-IV)  15
    Wechsler Preschool and Primary Scale of Intelligence-Third Edition 2.6-3.11 (WPPSI-2.6-3.11) 30
    Wechsler Preschool and Primary Scale of Intelligence-Third Edition 4.0-7.3 (WPPSI-4.0-7.3) 81

     

  • Executive Functioning Measures

     

    Instrument

    count

    Behavior Rating Inventory of Executive Function-Parent Version (BRIEF) - Prelim. 195
    Behavior Rating Inventory of Executive Function-Preschool Version (BRIEF-P)  139
    Delis-Kaplan Executive Function System (D-KEFS) - Prelim. 444

     

  • Language Measures

     

    Instrument

    count

    Child Communication Checklist-Second Edition (CCC-2) 149
    Clinical Evaluation of Language Fundamentals Preschool- Fourth Edition (CELF-IV) - Prelim. 197
    Clinical Evaluation of Language Fundamentals Preschool-Second Edition (CELF-P2) - Prelim. 62
    Comprehensive Test of Phonological Processing (CTOPP)  601
    Peabody Picture Vocabulary Test- Fourth Edition (PPVT-4) - Prelim. 580

     

  • Life Skills

     

    Instrument

    count

    Aberrant Behavior Checklist (ABC) - Prelim. 233
    CBCL 1.5-5 years 262
    CBCL 6-18 years 365
    Developmental Coordination Disorder Questionnaire 2007 (DCDQ) - Prelim.  204
    Vineland-II 785

     

  • Medical History

     

    Instrument

    count

    AC Medical History 650
    ADI-R Insert 148
    Abbreviated Physical Exam Sheet - Prelim. 368
    Dean Handedness 357
    Family History Insert - Prelim. 338
    Height Weight Head Circumference 267
    Medical History Supplement 608
    Parent Substance Use History (PSUH) 461

     

  • Other Autism Measures

     

    Instrument

    count

    SCQ-Current - Prelim. 31
    SCQ-Lifetime - Prelim. 383

     

  • Other Measures

     

    Instrument

    count

    SCL-90-R - Prelim. 347

     

  • Quality of Life Measures

     

    Instrument

    count

    PedsQL 13-18 - Prelim. 24
    PedsQL 2-4 - Prelim. 70
    PedsQL 5-7 - Prelim. 60
    PedsQL 8-12 - Prelim. 57