There are many opportunities for families to participate in autism research. You can join a clinical trial, enroll in a research study, or participate online by adding your family information to a research database. 90% of children with cancer are enrolled in clinical trials, but only 5% of children with autism currently participate in research. Your participation will make a big difference.
Listed here are many opportunities to get involved in research in the New England area. Read about the studies here, contact researchers directly with questions or for more information, subscribe to get updates on any or all of the studies.
February 11, 2015
Matthew Goodwin, PhD
Location: Boston Area, in home
Researchers at Northeastern University and the Georgia Institute of Technology are looking for families that include a child on the autism spectrum to take part in an in-home research study. This study will entail a research team installing video cameras in 1-2 rooms of your house for a period of up to one month. Video sessions will be recorded... Read more
February 3, 2015
Susan Faja, PhD
Location: Boston Children's Hospital
In the Faja lab we are testing new computer games to improve executive functioning in children with autism spectrum disorder (ASD). So far, there have only been two published studies using interventions to improve executive functioning skills in children with ASD. In the GAMES Project, we will test whether computer games that have improved... Read more
January 22, 2015
Ruth Grossman, Ph.D.
Location: Emerson College
Researchers at Emerson College are looking for typical children and children with Autism Spectrum Disorders (ASD) ages 10-16 to participate in research about how children with and without ASD interpret and produce emotion in facial expressions and tone of voice during daily conversations. Children will watch images or videos on a computer screen... Read more
January 14, 2015
Dr. Linda Bandini
Location: UMass Medical School/ E.K. Shriver Center
The purpose of the Children’s Mealtime Study is to learn about the eating patterns, mealtime behaviors, and parent feeding practices of children ages 3-8 years who are either typically developing or have an intellectual/developmental delay.
The study involves one 2-3 hour visit at a UMass Medical School-affiliated site and parents complete a... Read more
January 7, 2015
Alvaro Pascual-Leone, MD, PhD
Location: Beth Israel Deaconess Medical Center
We are currently seeking participants for a brain research study at Beth Israel Deaconess Medical Center.
The main purpose of this study is to compare brain plasticity between people with Autism Spectrum Disorder (ASD), people who are intellectually disabled and people who have typical intellectual function. Research suggests that during... Read more
January 7, 2015
Seth Ness, MD (Janssen) Matthew Goodwin, PhD (Northeastern)
Location: Northeastern University
The main goal of this study is to evaluate the usability of the JAKE as a system to monitor clinical outcomes in ASD.
Doctor Goodwin is doing this study for the sponsor. An independent ethics committee or institutional review board has approved the study.
About 80 patients ages 3 through adult will take part in this US study.
- An interface to... Read more
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