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Research Studies

There are many opportunities for families to participate in autism research. You can join a clinical trial, enroll in a research study, or participate online by adding your family information to a research database. 90% of children with cancer are enrolled in clinical trials, but only 5% of children with autism currently participate in research. Your participation will make a big difference.

Listed here are many opportunities to get involved in research in the New England area.  Read about the studies here, contact researchers directly with questions or for more information, subscribe to get updates on any or all of the studies.

 

October 30, 2014
Clinical Trial for Patients with Fragile X Syndrome and ADHD

Lisa Albers Prock, MD, MPH, FAAP

Location: Boston Children's Hospital

Doctors and researchers at Boston Children’s Hospital are conducting a research study for individuals aged 15-55 years with fragile X syndrome and Attention Deficit Hyperactivity Disorder (ADHD).  The purpose of the study is to assess the safety and effectiveness of an investigational drug for the treatment of the inattention symptoms of ADHD... Read more

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Tags: 10 to 18; Over 18; Boston Children's Hospital; Treatment;

October 14, 2014
Language Development in Young Children with Autism

Sudha Arunachalam, Ph.D

Location: Boston University, Sargent College

The Child Language Lab at Boston University is looking for healthy, English-speaking children from ages 19 months to 5 years who have been diagnosed with Autism Spectrum Disorder (ASD) to participate in research on language and cognitive development. Our studies take place in a comfortable setting at Boston University's Charles River campus.... Read more

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Tags: Under 5; Boston Medical Center/Boston University; Cognition and Behavior;

October 10, 2014
MRI with Children and Adolescents Diagnosed with Fragile X or Down Syndrome

Jean A. Frazier, MD

Location: UMass Medical School - CANDI


The Child and Adolescent Neurodevelopment Initiative (CANDI) at the University of Massachusetts Medical School is conducting a research study focused on Magnetic Resonance Imaging (MRI) with children diagnosed with Fragile X or Down Syndrome.

Purpose of the Study:
This study is sponsored by the University of Massachusetts Center for Clinical... Read more

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Tags: 5 to 10; 10 to 18; University of Massachusetts Medical School; Brain imaging studies;

October 10, 2014
Investigational Drug Study for Adolescents and Adults with Fragile X Syndrome - 2

Jean A. Frazier, MD

Location: UMass Medical School - CANDI


The Child and Adolescent Neurodevelopment Initiative (CANDI) at the University of Massachusetts Medical School is conducting a research study for an investigational drug to treat symptoms associated with Fragile X Syndrome.

Purpose of the Study:
This study is sponsored by Alcobra LTD and is being conducted by approximately 10 research centers... Read more

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Tags: 10 to 18; Over 18; University of Massachusetts Medical School; Treatment;

October 10, 2014
Investigational Drug Study for Adolescents and Adults with Fragile X Syndrome - 1

Jean A. Frazier, MD

Location: UMass Medical School - CANDI

The Child and Adolescent Neurodevelopment Initiative (CANDI) at the University of Massachusetts Medical School is conducting a research study for an investigational drug to treat symptoms associated with Fragile X Syndrome.

Purpose of the Study:
This study is sponsored by Neuren Pharmaceuticals and is being conducted by approximately 5 research... Read more

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Tags: 10 to 18; Over 18; University of Massachusetts Medical School; Treatment;

October 2, 2014
Gender Exploration of Neurogenetics and Development to Advance Autism Research

Charles A. Nelson, PhD & Nadine Gaab, PhD

Location: Boston Children's Hospital

The current study is part of the Autism Center of Excellence (ACE Network) which includes researchers from Yale University, UCLA, the University of Washington, and Boston Children’s Hospital. The purpose of this study is to identify gender differences in brain structure, function, connectivity, and genetics in children and adolescents with... Read more

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Tags: 5 to 10; 10 to 18; Boston Children's Hospital; Cognition and Behavior;

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